Using birth certificate data, demographics of mothers and children who completed SEED were compared with those who were invited but did not complete the study. Children who enrolled in the study were given a comprehensive evaluation to confirm case status. The autism spectrum disorder (ASD) and developmental disability (DD) groups were recruited from health and special education sources servicing children with developmental disabilities. The population (POP) sample was recruited from birth certificates. This report describes characteristics of those who did or did not participate in and complete Georgia SEED between 20. Schieve LA, Harris S, Maenner MJ, Alexander A, Dowling NF Assessment of demographic and perinatal predictors of non-response and impact of non-response on measures of association in a population-based case control study: findings from the Georgia Study to Explore Early Development Increasing access and availability for evidence-based services, especially for children with public insurance only, may improve service use and outcomes for children with ASD.
These findings suggest that many preschool-aged children do not receive community-based services, and the receipt of certain important services varies by insurance type. However, children with public insurance alone were the least likely to receive behavioral therapy and the most likely to receive psychotropic medication. After adjusting for sociodemographic variables, insurance status was not associated with the number of different types of community-based services received. Nearly 40% of children received no community-based services at all. The most commonly received services were speech therapy and occupational therapy. In addition, 13% had both types of insurance, while few children (1%) were uninsured. The results showed that about 35% of the children with a prior ASD diagnosis had public insurance alone and 51% had private insurance alone. In this report, insurance status was categorized as private insurance alone, public insurance alone, both private and public insurance, or uninsured. The Study to Explore Early Development (SEED) provides important information, not available in previous studies, on the use of community-based services by insurance status in preschool-aged children. However, additional community-based services such as behavioral therapy, speech therapy, and occupational therapy are often needed. Children eligible for autism-related special education services are required by law to receive individualized ASD services in school (“Individuals with Disabilities Education Improvement Act of 2004,” 2004). This study examined the association between insurance status and community-based services received outside of school among preschool-aged children with a prior autism spectrum disorder (ASD) diagnosis. Research in Autism Spectrum Disorders, 2019 Rubenstein E, Croen L, Lee LC, Moody, E, Schieve LA, Soke GN, Thomas K, Wiggins L, Daniels J This study fills a gap in data on adults living with ASD in the United States because there is not an existing surveillance system to collect this information. Greater coordination among healthcare programs and interdisciplinary training for providers could expand access to services and increase provider comfort in treating the unique healthcare needs of adolescents with ASD, and support healthcare planning as they transition from pediatric to adult health care.ĬDC Releases First Estimates of the Number of Adults Living with Autism Spectrum Disorder in the United States Only 1 in 13 adolescents with Autism Spectrum Disorder (ASD) received the recommended guidance to move from pediatric to adult health care. Transitioning from Pediatric to Adult Health Care is Often Difficult for Adolescents with ASD
Linking statewide health and education data is an effective way for states to have actionable local autism spectrum disorder (ASD) prevalence estimates when resources are limited. Study Shows Linking Statewide Data for ASD Prevalence is Effective ADDM Network Expands Surveillance to Identify Healthcare Needs and Transition Planning for Youthįive of CDC’s ADDM Network sites (Arkansas, Georgia, Maryland, Utah, and Wisconsin) began monitoring autism spectrum disorder (ASD) in 2018 among 16-year-old adolescents who were initially identified as having characteristics of ASD in 2010.
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